The Ambivalent Widow

At first, sleeping on Tommy's side of the bed seemed like a good idea: It was a quicker trip to the bathroom and would eliminate the nightly toe stubs endured during my darkened path from my side.

But, in this new space, I hadn't had a full night sleep since my husband died November 2. At first, I blamed it on a sort of Post-Traumatic Stress Disorder following three demanding events: my hip replacement surgery, 10 days in the hospital with Tommy, and finally an additional 12 at home with him in hospice care

Then, I dismissed the PTSD theory and fixed on this: Tommy, despite his journey to heaven, wanted his side of the bed back. The 11 p.m. and 2 a.m. wake-ups I'd been experiencing were really my husband elbowing me over to my side.

So, last night I obeyed. I returned my iPad to a charger on my bedside table, and lined up on the nearby windowsill, my water bottle, Melatonin pills, Tylenol, and Neutrogena hand cream -- the same setup prior to my switch. I arranged a mini-memorial on Tommy's bedside table with his portrait, his beloved AM/FM earphones, the 40-year-old wallet he refused to replace, his wristwatch that displayed date along with time, and his wedding band.

Then, I scooted onto my side, pulled up the covers, and bawled. My partner was gone. His side of the bed was empty. He would never return for our nightly spooning, or our ritual of him patting me on the tush and me returning a mild pat to his head, and finally, our exchange of “love you,” before falling asleep.

On my side of the bed, I continued to wail as my stored up grief filled the room. I realized I'd been so intent on getting my life back together, that I hadn't allowed myself to mourn my loss. Oh, I had cried each time I left his thinning and weakening body while he was in hospice, and I cried when he finally gave up his last breath, but I hadn't cried over his absence.

After I could sob no longer, I turned over, clicked on iTunes, and slept for 8 hours. There were bathroom trips cautiously tread, but I willingly took this longer route, then snuggled into my old spot hugging his pillow as substitute.

This new role for me as Widow has me ambivalent. There are times of dark loneliness and sorrow. But there are also times of relief that my husband's suffering has ended, and there is glaring awareness I have gained new freedom.

While Tommy's death was sudden and unexpected, my caregiving for him was long and challenging. He was diagnosed with FTD/PPA in 2009, but there were signs my husband had the illness years before.

As Tommy's symptoms worsened, he relinquished his car keys and I became his chauffeur. I feared letting him venture out alone, or even being in the house on his own. Trips to my out-of-town daughters ceased, because he would not be able to call 911 if he got into trouble. My calendar revolved around him. On Tuesdays, if his golfing buddies had a game and took responsibility for him, I was free to make plans with friends. When the boys bailed, I'd take Tommy to practice golf, and then we’d lunch together. I did not want him to be alone, to be without company.

Now, with my husband gone, and my job as caregiver canceled, I’ve booked tickets to Boston in November and Los Angeles in December. I’ve made lunch plans on days of the week that aren’t Tuesday. I take my time returning in the morning from the health club, unlike in the past when I made sure to get back before Tommy woke.

Tommy and I would have celebrated our 15th wedding anniversary January 13, 2013 -- an occasion we looked forward to. We planned to grow old together. It was the second marriage for both. We were content and happy. We rarely argued -- we were satisfied sitting on our facing couches, watching our favorite television shows, and early on, taking turns on the crossword puzzle.

My new solo routine is this: before I go to my side of the bed, where I evidently belong, I pause at Tommy's picture. I bring my fingers to my lips, then place them on his photographed face. "Love you," I say. I hear his response, clear as day, "Love you, too!" 

Then, I imagine my husband giving me another pat on my tush, this one indicating, “You go, girl. It’s your time now.” Anyway, that’s what I imagine.

An Untroubled Brow

This is what you look for in a hospice patient: the brow must be untroubled. Smooth, free of lines. There should be no grimacing. The face of the patient must be serene, peaceful.

Tommy has an untroubled brow. His face remains ruddy. His body is calm, arms propped on pillows to keep him comfortable, two pillows behind his sleeping head. A loose sheet covers his quietly breathing, thinning body.

Regularly scheduled doses of Morphine and Haldol, with an occasional drop of Atropine, are keeping my husband pain-free and tranquil, the goal of hospice.

Tommy, who worked out at the Lakeview YMCA three-times-a-week for 40 years, is hanging in. "There's no way of telling," doctors and nurses tell me. "Three days, three weeks?" Those estimates are not my husband's concern. His body will leave this earth when it is good and ready. I know this, I am prepared, even though at times I expect Tommy to yawn, raise his arms as if stretching, give me two thumbs up to indicate a good night’s sleep, then hop over the bed's steel sides, and dress.

That will not happen. My husband, when he decides he has had enough of his blubbering wife who strokes his head, holds his hand, and whispers "it's okay if you leave," will slow his breaths and that will be that.

Meanwhile, he is being cared for at home by me and a rotating roster of home health aides, hospice nurses, and Certified Nursing Assistants. A few of these people will be stellar -- like Stuart, the CNA who was originally hired to drive Tommy to the Y one day a week. Surprise: Stuart is receiving a PhD in nursing before he enters the college. I offered to write to Loyola's administration and tell them Stuart has completed all the necessary coursework.

Others I loved, like Rebecca, Qui, and Emile. Some I tolerated, and one I insisted never step foot in my house again. Along with inappropriate behavior; i.e. yammering loudly on her cell phone, she texted me constantly from the second floor for various items close at hand. But the straw was when she decided, without consulting me, to remove all of the supplies I had arranged in rows on our empty queen-sized bed, and place them instead on top of dressers, end tables, window sills, and on the floor of the shower hidden by a curtain.

"I wanted the room to look like a bedroom," she explained as she waved her hand atop the empty bedspread.

When the hospice nurse arrived, she shook her head and returned every box of gauze pads, suction tubes, bed pads, disposable underwear, lotions, and dozens of other supplies back to their original spots. "Much better," she said after all was returned. I hugged her.

I talk to my husband each time I enter the room. Once I pulled up a chair to read him a letter. Tommy had written it to me in 1996, two years before we married. By the grace of God, I kept it safe. My husband spoke of love, commitment, promises to care for me -- in beautiful handwriting, two pages full. At one point during my reading, he opened his eyes and looked at me, as if to say, "I remember writing that."

With every visitor that enters the house I say, "I'd like you to read Tommy's letter." Although his words were meant for me, I fear our friends will only recall the Tommy who struggled with aphasia and could no longer speak, who stopped reading mysteries, or who was unable to fix a broken cabinet door. I want them to know the Tommy who was smart, romantic, eloquent.

Many loved ones -- concerned about my well-being and ability to pay for ‘round-the-clock nursing care -- urged me upon leaving the hospital to place Tommy in hospice care in a different setting outside the home. “It will be overwhelming,” they predicted.

In a first email update to this group I admitted, “You were right, it’s overwhelming. But, I am doing it.”

Along with the hired caregivers, I am supported by friends, relatives, and neighbors who visit Tommy and me, who bring food and offer to handle any needed tasks. I have doled out assignments, from picking up Chicago hot dogs to taking my Honda Fit in for servicing.

We will get through this. Meanwhile, we keep watch for an untroubled brow.

How To Suction A Tracheotomy

My last blog post was Sept. 18, two days before I was to undergo a total hip replacement. That was a lifetime ago.

Today, more than a month later, my hip is nearly repaired and I am back to driving and usual activities. Sadly, tragically, those activities now include caring for my husband at home, with hospice and caregivers as support.

We have been through an unbelievable nightmare, with my dear Tommy suffering more than anyone else. It all started with swallowing. For several months he had to be reminded to chew one mouthful before taking another. Then, that routine started to deteriorate until he could not swallow anything. Sips of water or Gatorade were taken in, then spat out.

Dehydration was a worry. One evening, when I was already upstairs, I heard a thump. I ran down and at the foot of the stairs was my husband, awake, unhurt, but seeming to wonder what happened to him.

The following morning, Stuart -- a CNA (Certified Nursing Assistant) who had been driving Tommy to the YMCA several days a week -- and I took him to Northwestern's ER. He was admitted with severe dehydration. Because Tommy could not swallow -- which we all assumed was a symptom of his Primary Progressive Aphasia --- the ENT team recommended a tracheotomy (lest he smother) and a feeding tube for nourishment.

This is the part where the nightmare become so dark and frightening that we pray it is indeed something happening in our sleep. But, it was not to be; it continued when awake. When the ENT team attempted to insert a tube through his mouth to his stomach, they encountered a blockage, a mass. Doctor's diagnosis: "Squamous cell carcinoma of supraglottis. You are not a candidate for treatment for this cancer." Throat cancer. Aggressive.

Our decision was to bring him home to hospice care where he can be kept as comfortable as possible.

After 10 days in the hospital, on Oct. 21 we returned via ambulance to our house in Independence Park. Several neighbors had already been on board to assist with equipment delivery and to get Tommy all set up in our bedroom. Other neighbors wrote their phone numbers on slips of papers with the words, "anytime, 24 hours."

Now, my husband is hooked up to balky machines that provide oxygen and humidity with a tube that goes directly into his tracheotomy. Every few hours, he will cough, alerting me and a CNA, Rebecca, or other round-the-clock caregivers, that his trach is accumulating mucous and secretions and making it difficult for him to breathe. That's where the suctioning comes in. I watched the hospital nurses perform the procedure, studied a YouTube video, assisted Rebecca on her first suction, and then, miraculously did the cleanse, insert, twist, suction, and extraction on my own.

Of course, the big question is did his brain degeneration and aphasia cause the swallowing problem, or the throat cancer? The physicians say it could be a combination of both illnesses. Does it matter?

All that is important now, is keeping Tommy comfortable, peaceful, and pain-free. He is home, in his own bedroom. That's all I can ask for now.

Prince Charming

Tommy is on bended knee before me holding a Capezio ballet slipper in one hand. We are both laughing. The scene reminds me of Prince Charming when he finds his Cinderella and the perfect foot to fit the glass slipper.

Our mirth doesn’t exactly match the fairytale, but instead is my husband attempting to figure out where to put the elastic strap that crosses the instep on the shoes I use as house slippers.

“No, Honey, my foot goes under the strap and into the shoe,” I tell him as I put a hand on his shoulder to steady myself. But Tommy insists on putting the band on my heel.

I am unfazed; we have several days left to practice. I’m readying Tommy to help me when I return from hip replacement surgery and am not allowed to bend over to put on my own shoes. He is eager to show me he can come through for me.

Earlier that day at lunch, I deliberately dropped a napkin on the floor. “Honey,” I said, “this is a rehearsal. Can you pick up the napkin for me?” He did, with a grin. He was enjoying this gallant role.

My tests continued throughout the day. “Give me your elbow, please,” I said. Actually, this trial needn’t wait until post-surgery because I’m already a hobbler with my arthritic hip. “And walk slower, Honey, I can’t move this fast.” He complied, and like an escort leading an elderly patron to the opera, he moved one foot at a time.

At home, it was this request: “Keep your eyes on me as I walk up the stairs. Just in case I topple backwards.” Instead of viewing my assent from his spot on the couch, my Prince Charming rose and stood at the base of the stairs. He watched as I slowly practiced the step-to-step instructions in my pre-surgery pamphlet.

When I reached the top of the stairs, Tommy returned to the couch and his TV program. That was fine with me; he had completed enough tests to assure me he’d be a competent caregiver. And if I needed further evidence of his empathy for the ill, all I’d have to do is to recall an incident with an ailing uncle that convinced me Tommy would be a good mate.

My Uncle Nate was in a residential facility suffering from Parkinson’s and dementia. It was no longer safe for him to be at home. Tommy and I weren’t married at the time, just mature sweethearts when he accompanied me for a visit. As soon as they were introduced, Tommy said to my uncle, “Would you like to take a walk?” Then, he hooked an elbow and slowly ambled along the hallway with Uncle Nate.

As I watched the two men -- one a treasured figure in my childhood, the other a second-husband prospect -- I realized how important this trait would be in my life. Tommy would be someone I could count on, to care for me when the need would arise.

As it turned out, Tommy beat me to it. I’ve been the one wearing the caregiver’s cap. But I know, that if the situation were reversed, if I was the one suffering a variety of losses, my husband would not leave my side, nor protest his new responsibility.

So, we’re about to have a real-life test, albeit a temporary one. I’ll be in the hospital for two days (prayerfully), then home to rehab for three to six weeks.  Friends, relatives, and neighbors will be around to assist us both.

But there will be times during my return to physical health that it will be just my husband and I. While Tommy is silent in his requests, mine will be loud and insistent: “Honey, I want my cane,” I can hear myself saying. Or, “please put a load in the laundry so it doesn’t pile up.” Perhaps, “Can you start dinner? Make salads? Set the table?” All new language of need from yours truly.

I’ve been fortunate, in the years we’ve been together I’ve been a healthy woman -- no previous hospitalizations and no memorable cold or flu that required Tommy’s attentiveness. If there were, he evidently brought me the requested medicine, bucket, or broth, or I would have remembered his lapse. Wouldn’t I have?

I am certain that in this upcoming episode in our lives, Tommy will turn out to be caregiver extraordinaire, and soon enough he will figure out the Capezio's. Tending to his Cinderella will soon be old hat for my Prince Charming.

Tommy Untucked

“Are you sure you want me to buy these?” I asked Tommy as we stood in the candy aisle at Target. In one hand, I was holding a 10.5 ounce bag of mini Three Musketeers, Milky Ways, Trix, and Snickers;  and in the other, a 12 ounce mini Hershey’s with nuggets.

As I waited for my husband’s response, my eyes landed on his tummy, which lately, has plumped and oozed over his belt.

Ignoring my stare, Tommy answered with two thumbs up.

I persisted. “Honey,” I said. “These candies are making you gain weight.” I shook each bag for emphasis. “You’re eating too many of them.”

He continued his affirmative thumb raise.

“Okay,” I said, as I tossed the bags into the cart and rolled on.

My 77-year-old husband is dealing with a serious medical condition that has robbed him of speech and dimmed his reasoning.  How could I deny him sweets? Also, he is stubborn and likely wouldn’t listen to any lectures on wise food choices.

But, as I pushed the cart through the aisles, and Tommy headed up the escalator to savor golf equipment, I thought of the man I married 14 years ago. He was a proud 145 pounds with nary an ounce of pinch-able fat. His biceps were solid as Major League baseballs, his calf muscles impressively sloped upward, and his stomach enviously flat.

This physique was hard-won. “I was a smoker and overweight,” he had confessed in the dawning days of our romance. “My cholesterol was high and I was in lousy shape. When the doctor told me I had to change my lifestyle or I’d die, I did what he said.”

So, Tommy joined the local YMCA and became a regular. He stopped smoking, started running and bike riding, and within time, dropped weight, and lowered his blood pressure and cholesterol measures.

On top of that, four years into our marriage, he became a vegetarian and has remained meat-, chicken-, and fish-free since then. He’s judicious on portions and appears to stop when full. But, he can’t seem to resist those mini chocolates.

Throughout the day, I will see him rise from his prone position on the couch, or upon returning from a bike ride or park walk, and head for the kitchen. I’ll hear the familiar gasp of the opened freezer door, the crinkle of a plastic bag, then the slap of the sealed door. Next, the pop of the garbage can lid, the rip of foil, and the sugary symphony’s final note as the lid slams shut.

The other day, I decided if I couldn’t stop Tommy from gorging on the minis, I could do something to improve his appearance and ease.

He was on the couch flipping the remote, and as always, his t-shirt was tucked into his size 36 cargo shorts, and a black leather belt was looped and clasped in the waist band. His paunch loomed over the belt, which didn’t disguise the freed first button.

“Why not remove the belt and untuck your shirt.” I said. “You’ll be much more comfortable.”

I didn’t wait for his answer. I unhooked the belt from its notch and wrenched it out like a whip. Then, I wrestled his Japanese Free Spirit t-shirt out of his shorts and draped it over his stomach.

“Now, stand up, Honey,” I said. “Isn’t that better?”

He rose, gave a deep breath, put two thumbs up, and did a little shimmy shake which I took as two degrees above the thumb raise.

 “You look nicer, too,” I said. “Slimmer.”

He grinned and did one more dance before returning to the couch and MeTV.

Now that he’s untucked, and his belly is hard to spot, I ignore his jaunts to the freezer.  Let him enjoy. There’s always 38’s, elastic waist bands, sweat pants, and other wardrobe fixes that will allow my husband to expand. 

At his next exam, when his cholesterol and blood pressure are checked, it will be up to his doctor to learn if the levels rose, and perhaps issue a warning. But since she knows Tommy’s diagnosis, and is aware of his losses and day-to-day struggles, I suspect her prescription will be similar to mine: “Enjoy,” she’ll say.

And, he will.

Better Late Than Never

When Tommy returned from his trip to Walgreens, he was  carrying a plastic bag that appeared to contain more than the Triple A batteries he had gone to purchase. From the square shape of the box within, I thought it to be golf balls.

“What did you get?” I asked. I was teasing, for no matter how many dozens he has stored on basement shelves, I don’t mind him adding to his collection.

My husband smiled and entered the house, leaving me on the porch where I had stationed myself to enjoy a beautiful Saturday afternoon. But after spilling coffee on a garden chair, I left my spot to get clean-up equipment.

I spotted the square box on the kitchen counter. Instead of a package of golf balls as I had guessed, the box was yellow trimmed in gold and decorated with the familiar red flowers, green border, and the words “Whitman's Milk Chocolates Sampler” in green script. A yellow envelope addressed to me was laid next to it. I opened the card that read, “Happy Birthday from the Group!”

“Thank you, Sweetheart!” I called out as I searched for Tommy. I found him installing the new batteries into his headphones, and acting as if there was no surprise waiting for me. 

“I love the card and the chocolates!” I said as I pulled him from his task.

My husband’s eyes moistened. He placed the Triple A’s and headphones on the counter and bent down to accept my kiss. Then, he picked up his equipment and returned, smiling, to finish his job.

Although my birthday was the previous week, and “from the Group” was a bit off base, I was thrilled to receive both the card and the gift. Tommy had remembered after all. I know he chose this particular card, rather than a more appropriate, “To My Wife,” because at Walgreens he didn’t have with him his reading glasses, and this card’s “Happy Birthday” was large, colorful, and easy-to-spot. He didn’t sign it, but no matter. I knew the identity of my my gift giver.

On August 10, the morning of my actual birthday, when the kitchen counter was vacant of card or chocolates, I wasn’t hurt or angry. I knew if my husband could have pulled it together, he would have. On past birthdays, I could count on a sentimental “To My Wife” card and bouquet of flowers greeting me in the morning. But since Tommy no longer drives, I realized that would have been difficult.

I’m certain he knew the actual date because phone calls wishing me "Happy Birthday" started early that morning and cards that arrived in the mail were displayed on our dining room table, along with a basket of treats my daughters had sent.

Because I thought his lapse on my special day was due to his inability to purchase something on his own, I had an idea. When his Friday driver, Stuart, came to pick up Tommy, I made this suggestion: “There’s a Hallmark’s next to the coffee shop where you get Tommy,” I said. “Tell him you saw on Facebook that it was my birthday and would he like to stop in and get a card.”

“No problem,” Stuart said. But when the two arrived home and my husband led the way inside with only his gym bag, I looked at Stuart for clues. “I asked him,” he whispered to me, “but he made it clear he wanted to go straight home.”

Since Walgreens is only a block from our house and Tommy’s language problems don’t prevent him from making an off the shelf purchase, he could have bought the card and chocolates on my actual birthday. And Stuart did give him the option to buy something that same day. My husband chose neither.

I have a theory as to why he picked today -- eight days after the fact. I believe he wanted to separate himself from the crowd -- make his gift and card more special than the rest. He wanted to let me know he cared more for me than anyone else, more than the first-thing-in-the-morning well wishers or card and gift senders. 

Anyway, that’s what I think. It doesn’t really matter. The greeting card “From the Group” is propped on its own on the dining room table, and every bite of candy feels like love.

The Kids Are All Right

Tommy and I have just expanded our family: a boy and a girl. They arrived not as bundles from heaven, but in a Jeep and on a bicycle. In truth, they are young adult companions for my husband -- miracles of referrals rather than biology or science -- who I’ve hired to give me respite from ‘round-the-clock caregiving.

I do have flesh-and-blood daughters. But since they live on either coast, they can’t be at our beck-and-call. As for Tommy, he entered this second marriage sans children; hence my designation of this new adopted duo as “our kids.”

Before our boy Stuart came for his first assignment, I prepped my husband. Unlike the cinematic moment: “Darling, I have wonderful news. You’re going to be a father,” my revelation went something like this: “Honey,” I said, “I’ve hired a young man who will take over driving you to the Y one day a week. He’s a CNA, that’s Certified Nursing Assistant, so he can also help out when I have my hip replacement surgery.”

Well, okay, I fudged a bit. Stuart’s medical credentials are important for Tommy’s condition, but I hesitate reminding my husband of his special needs. I can take the fall  -- metaphorically of course because of the hip thing -- as I really do see our boy being helpful when I’m shouting for my crutches.

After Tommy gave the plan two thumbs up, I gave Stuart this checklist: “Before you leave the house, be sure Tommy takes his reading glasses, cellphone, gym bag, and that he’s wearing his dental bridge, baseball cap, and gym shoes.” Stuart -- using an impressive two thumbs entry -- recorded it all on his iPhone, immediately winning me over with the product and the pace.

On the morning of their first drive, I left for the health club at 6 a.m. Stuart would use his own new key to gain entry at 8:30. “Don’t text me unless there’s a problem,” I had told him. But, that didn’t keep me from checking my own iPhone at 8:30, 8:45, 9:00. Nada. I was at peace.

Tommy and Stuart were due back between 11:45 and noon. After a sublime four hours to myself, I returned home to await their arrival. At 11:40 I stationed myself at our picture window and watched as each car turned the corner into our street. At exactly 11:45, a black Jeep entered my view.

“Everything was fine,” Stuart said as Tommy walked into the house with two thumbs raised. “He was all set when I arrived, everything on the checklist completed.” I felt as proud of them as if they had just aced their ACTs.

Our girl Kristen had been engaged to be my husband’s companion one afternoon a week. Her task is to follow him as he rides his bicycle to a park about a mile away, and then circles the grounds four times before heading back home. Ever since Tommy returned from a ride with an unexplained bruise on his leg, I’ve worried about his safety.

For her first shift, Kristen rolled up to our house outfitted in a gingham summer dress over bike shorts. She wore a helmet; and slung across her body, an enormous leather purse, which I later insisted she forgo in favor of one of my archived backpacks.

I had told Tommy about Kristen’s arrival, and again employed the hip excuse. “I won’t be able to drive for at least four weeks,” I said. “Kristen can keep you company on bike rides, or use our car to take you to the putting green, golf store, or wherever you want to go.”

But I needn’t have dissembled because the moment Kristen -- who is an actress -- removed her helmet, shook out her hair, and smiled, my husband rushed to the garage to get his bike. While this duo was on their ride, I once again peeked at my iPhone willing away any text messages. Gratefully, as with her faux sibling, none arrived. And in a little over an hour from the time they left, the two returned.

“It was fine,” she said. “I followed behind him [they use sidewalks] and alerted people as we approached. We stopped for water, then headed home.”

Tommy, his face moist and smiling, gave her two thumbs up as he headed for the couch. Before she left, Kristen went to where Tommy was prone to say goodbye. Instead of shaking his hand, she dotted his damp forehead with a kiss.

Perhaps our kids are heaven-sent after all.

The Turn Around Tango

It’s 5:00 p.m. and the dance my husband and I perform daily -- which I have dubbed “The Turn Around Tango” -- is about to begin. Music would be nice, but our duet is staged in silence.

I’m in the kitchen preparing dinner. A pot of spaghetti is nearing its boil on the stove. I remove a colander from its place in a cabinet and set it in the sink. When the timer rings, signaling al dente, I lift the pot by its two handles and turn around to dump pasta and water into said colander. Alas, the pockmarked utensil has vanished.

In his fancy step, while my back was turned, Tommy has removed the colander from the sink, placed it back in the cabinet, and exited. He has not done this to vex me; this I know. He just can’t help it.

I remain standing -- a tricky move because I am holding the caldron with padded gloves, steam is clouding my eyeglasses, and I have nowhere to toss its contents. I hold this pose for a beat, then swivel and return the steaming pot of spaghetti to the stove.

Early on, when I first encountered my husband’s stealth move, I would try this: “Honey,” I’d say, “Please come back into the kitchen and get the colander out of the cabinet where you put it. I need to drain the spaghetti.”

Tommy would return, a contrite grin on his face, and perform his well-practiced steps. But, I no longer make that request. I have memorized my moves: button lip, pot back to stove, retrieve colander, return to sink, lift pot, dump.

Our Turn Around Tango takes place in other areas of our house and at various hours. A pantry door opened to extract garlic and Italian spices, is closed before I get out the first dash. Same for refrigerator when soy milk is used for my Cheerios. Ditto the garbage can lid I keep open while doing kitchen prep.

The reporter notebooks I use for Trader Joe’s and Target shopping lists are invariably returned to a neat stack after I have separated and laid them side-by-side for easy entries. All it takes to cue my spouse is for me to turn my back.

“Don’t you get mad?” I was asked by a friend. “Don’t you want to scream at him? Tell him to leave your stuff alone?”

I answer, “I think it helps Tommy when I remain calm.” I believe this to be true. My husband shows no rage in dealing with his illness.

To this friend, who has had her own frustration with a stubborn, aging relative, I say, “I’m a patient person. This comes naturally to me.”

But, I fear I lie. I can recall many instances when I am anything buy patient. See me drumming the table of a restaurant until the waitstaff comes for our order. That’s me at the hot dog stand, stewing, while the proprietor chats it up with the customer in the front of the line. And yes, that’s me fuming in any and all medical offices while waiting for my name to be called.

So, how am I able to remain saintly with my husband? What good would it do to seethe or explode? His condition prevents him from veering from his compulsive, neat-making routine. The pattern of his dance steps is imprinted on his brain; he cannot do otherwise.

As for me -- petite and compact -- I’m quick on my feet. Over the years, I’ve been able to practice my moves. Sometimes, I stumble if the steps are too difficult. Often, I wish I could get one maneuver down perfectly before another is introduced into our lives.

Thus far, I’ve kept up with my creative dance partner. The trick is to let him lead.

When the Caregiver Needs Care

So I’m on the appliance store’s website and thinking the 5 cubic foot  Frigidaire White Chest Freezer at $197 might be a good idea. I could fill it with the pack of 4 Palermo pizzas I spotted at  Costco, and dozens of packages of frozen vegetarian dinners that my husband likes. That way, when I go to the hospital for two days, and when I’m thumping around on crutches, or with a cane, or pushing a walker, Tommy can possibly prepare meals.

My hip replacement surgery is scheduled for Sept. 20, eight months after two orthopedic specialists said, “You’re limping. It’s not your back, it’s your hip.” X-rays verified arthritis had eroded the cartilage in my right hip and the spooky, “bone on bone” was the culprit.

“Do it sooner rather than later,” my neighbor, the physical therapist, advised. Others chimed in with supportive quotes like, “wish I had done it 10 years earlier,” “I feel like a teenager again.”

But thoughts of any surgery, hospitalization, and rehab bumped up against my care-giving responsibilities. How would my husband fare if I had to be gone from him overnight? How would he continue his three-times-a-week exercise routine at the Y if I couldn’t drive for at least four weeks? Laundry,  grocery shopping, and this-and-that, kept me postponing a visit to a surgeon.

When I admitted I could no longer walk even once around our neighborhood park, I booked the appointment that led to the scheduled date. The surgeon concurred, “If medication and injections no longer work, surgery is the only option to relieve the pain and get you walking easily again.” He penciled me in his hospital schedule, gave me instructions for the interim (continue my cautious workout routine), and told me his nurse would be in touch. My planning began.

I alerted dozens of relatives, neighbors, and friends to my due date. Their responses: “I can help,” “Count on me,” “Whatever you need,” eased my mind. And when I told my husband the September date, and assured him his routines would continue unabated, he gave me two thumbs up.

I relaxed even more when I replayed a scene in my head. It was the first meal Tommy made for me after we met in 1996. He had been a bachelor for 15 years following a first marriage.  I was separated from my husband of 30 years and living in a new townhouse a few doors from Tommy’s apartment.

“This is lovely,” I remember saying as I toured his place. I thought he must have spent time tidying it up for my visit, but now, after having been married to him for 14 years, I realize he’s an orderly person and his apartment was likely untouched.

Tommy was smitten with me back then -- I have letters and notes to prove it. “Sit here,” he had said, pulling out a dining room chair slowly so it wouldn’t scrape or shriek. There was a place mat, I’m sure, and silverware on one side of a dinner plate. (I have since demonstrated how they are separated: fork to the left, knife and spoon on the right.)

Our meal was broiled chicken, cooked squash, and... What was the starch? I can’t recall. But I so remember the squash because I have replicated his recipe many times since then. (Brown sugar stirred into the defrosted and cooked block.)

The other thing that sticks in my memory of my bachelor Tommy was his Friday nights at the laundromat. As he described his weekly routine to me,  I could see my middle-aged swain sitting on a chair next to an empty shopping cart, a paperback mystery in his hands. One load of his laundry is soaking and spinning.

When he moved in with me, just a few months after the chicken and squash dinner, I took him by  hand to my washer and drier. “No more laundromats,” I said. I was happy to declare this. “Terrific,” he said as he put his arm around my waist and kissed my cheek.

So, why am I stressing? My husband can no longer speak, but he can certainly cook a frozen pizza and place an Amy’s fake meatloaf dinner in the microwave.  And, although Tommy hasn’t had to tumble a load for 14 years, I bet he could follow the instructions permanently imprinted on the inside cover of the Whirlpools.

If I purchase the extra freezer I could include several blocks of squash in the inventory. My husband’s memory is intact; I’m certain he’ll remember the recipe. Brown sugar is the key.

Crime Scene Investigation Chicago

It was like an episode of C.S.I. when the team prepares to search a dumpster for some vital clue. I was pulling on a pair of white vinyl exam gloves -- latex free, powder free -- and smoothing each finger so the glove would hug each digit. 

I used an empty plastic garbage bag to hold the contents of our tall kitchen trash can. Unlike the TV investigators who would be seeking elements of a crime, I was hunting for Tommy’s lost keys.

The receptacle was an inspiration and my last hope. My husband and I had already yanked inside-out all the pockets of his clothing. Had already peered under the bed, under the nightstand, under the couch cushions, under the couch. When all of these turned up empty, a dark thought entered my head: Tommy must have left them in the front door and some miscreant absconded with them.

So, I decided to change our morning’s plans. “We’ll go to Sunday breakfast,” I told my husband, “but instead of continuing on to do our banking and our grocery shopping, we’ll come home straight away. I’ll call a locksmith then to change our bolts.” He gave my plan two thumbs up.

As a devotee of all crime shows, I figured that whomever purloined the keys would be watching our house and burglarize it the minute we left. So after exiting the driveway, we drove around the block and crept back home. Since nothing was amiss, we proceeded to a nearby diner.

I raced through my egg white omelet with thoughts of my iMac and iPad being lifted from the house and piled into a white van with the misleading logo of a repair company. “Finish your coffee,” I said to my husband. I was already standing and packing up. “We’ve got to get home.”

No white van was parked in front of our house. Inside, my Apple products were safely tucked in their spots. Nothing had been disturbed. Still, I called a locksmith. While waiting for a callback, I decided on the dumpster-dive routine.

One by one I plucked. Gingerly. First, I lifted out a white cone-shaped coffee filter filled with the morning’s Trader Joe’s French roast. Next, crumpled paper towels that earlier held the ice pack used to soothe my aching back. Onward to dust and dirt swept up from the kitchen floor. Finally, I drew out several tiny foils that once wrapped around miniature chocolate candies.

And there they were: Tommy’s keys, staring up at me as if to say Ta-da! First, I cancelled the locksmith. Then, dangling the keys, I raced upstairs to our bedroom where my husband had not given up the search.  “Look,” I said. “I found them! They were in the garbage.” He grasped the keys, smiled, and plunged his fist deep inside his pocket.

This is what I figured happened: Tommy had left our neighborhood Block Party before me. He let himself into the house, removed his keys from the lock, but kept them in his hand. Then, he went straight to the freezer, plucked a candy from the door’s shelf, unwrapped it, and tossed foil and keys into the garbage.

I could ascribe Tommy’s lapse to his illness, but then a list of my follies -- and that of my two daughters -- popped into my brain. Once, I left my fully-loaded backpack on the floor of a local McDonalds -- overnight. Gratefully, the manager spotted the bag and held it for me until I came for it the next morning.

Another time, I left my wallet on the counter at Trader Joe’s. I didn’t discover my loss until I got home and was about to put away my receipt. An eagle-eyed employee had spotted it and kept it safe until I returned within the hour to retrieve it.

I remembered Faith’s story of leaving her MacBook on a seat at the boarding gate and not remembering it until she was belted in. A plea to the flight attendant miraculously won her an escape to pick it up exactly where she had left it.

And Jill left her MacAir still charging at her sister’s house after she had hugged goodbye and departed for Los Angeles. Federal Express brought it home to her within two days.

I relate these tales -- you are likely already contributing your own lost and misplaced examples -- to emphasize that sometimes, missing objects are not a result of some sort of theft, but instead are just a case of plain old absentmindedness. Nothing more. 

Softie

Tommy and I are on a subway platform in the Loop waiting for the Blue Line to take us home. I’m leaning on a metal column and peering down the track to spot the headlights of the next westward bound train.

My husband has positioned himself on the opposite side and selected his own pillar for support. His eyes are riveted on a pair of musicians a few feet from me. The male plays a guitar and the woman sings -- a Spanish song, quite lovely and a nice respite from the clang of trains and chatter of waiting passengers.

An open guitar case is at their feet. Some paper bills are already strewn inside from earlier donors, and perhaps the duo has seeded the case to encourage more.

I leave my train-watching to focus on my husband. I stare as his hand reaches into his pocket. I knew this would be coming. His eyes are misting as he pulls out his wallet and extracts a bill, which I’m hoping is one dollar. He  drops it into the guitar case and the duo nods a gracias in his direction.

“Musicians are okay,” I had told him earlier. “But the panhandlers on the corner are scam artists.” I believe this is true, for I’ve seen one on crutches suddenly able-bodied and sauntering from his spot near our house.

My husband obeys this rule. As long as he can drop a bill into a musician’s case, he’s a happy philanthropist.

Since I didn’t know Tommy in his younger days, I can’t attest to his generosity back then. But, because he’s always been frugal, I’m assuming he wasn’t so quick on the draw with street musicians and beggars.

I could be wrong, but I think the new largess is part of his current condition.The frontal lobe of the brain affects emotions and ever since his began to deteriorate, he’s become a softie. Along with his charity, he’s a weeper at sad and happy television shows, and bar mitzvahs and weddings.

When my husband begins to tear up, the celebration hosts are touched. “Such a sensitive man,” I imagine they whisper to one another.

I’ve done a lot of reading about Tommy’s condition and am relieved to learn he has not taken on another emotion that is sometimes linked to the illness: rage. If anything, he has become kinder (witness the charity), more sentimental (the tears), and softer. 

Because he can no longer speak, he doesn't send irritating comments to television commercials, obese strangers, or other innocent targets as I once complained about. I understand now those slurs were the beginning of his brain’s degeneration -- inappropriate responses are a classic symptom. I haven’t explored if these barbs are still in his head; I prefer to think he no longer holds them.

Today in the subway, I say to Tommy, “Honey, please show me what you gave the musicians.”  He opens his wallet and points to a dollar bill. “Good,” I say. “Now be sure to tuck your wallet deep in your pocket."  He does, then pats it for emphasis.

At the end of the line, when we have descended the stairs, a panhandler is at the stoplight near the expressway. He is holding a sign, “Homeless. Need Food” and is limping toward cars that are stopped and waiting for the light to change.

I turn to look at my husband. I see his hand reach for his pocket. “Tommy,” I say. He looks at me, nods his head, and drops his arm at his side. I take his hand in mine as we cross at the Walk sign. My husband glances back and watches the guy continue to hobble dramatically along the cars.

“Fake,” I remind Tommy. He nods his head in agreement. When we reach the other side, I look back and send a silent suggestion to the grifter, Should’ve hummed a few bars.

   

Do You Have A Visual?

On the day my daughter and I were combing the aisles of Ocean State Job Lots, we weren’t seeking the retailer’s “quality brand name merchandise at closeout prices,” but instead were searching for Tommy.

“I don’t have a visual,” I shouted to Faith.

“Me neither,” she said.

The tour of the 40,000-square-foot warehouse in Boston was Faith’s idea to keep my husband and I entertained during our visit to her hometown. She knows Tommy is frugal, and thought he’d enjoy browsing. It was there I was teaching her an exercise I call, “Find Tommy.”

I don’t think my husband deliberately tries to lose me. But now, during our trip, perhaps he had had enough of my hovering, my reminding, my suggesting, and decided to give me the slip.

Even if Tommy was just teasing me with his disappearing act, I worried because his condition has left him vulnerable if he should get lost. Hence my hunt.

At Job Lots, as Faith and I were mid-search, I shouted to her, “Check pet supplies.” 

“Nope,” she called back.

“Weed and feed fertilizer?” my daughter yelled. She knows Tommy loves gardening, so that section seemed a good bet.

We threaded the aisles as if in a maze. Down through household cleaners, up through bed linens, past golf shirts, until I spotted his Red Sox baseball cap.

“Hi Honey,” I said, as I latched onto his elbow. “Having fun?”

I gave no hint as to the game Faith and I had just competed in. My husband is a proud, physically-fit, 75-year-old, who bravely copes with his handicap.

I, on the other hand, am often muddled.

Consider this incident that occurred on the day we were to attend a children’s musical with my 10-year-old granddaughter in a major role.

“You must explore Jamaica Pond,” Faith had said on our first day as she dropped us off at our Bed & Breakfast lodgings. “Just turn left from your front door, cross the street at the light, and you’ll be on the trail. It’s a one-and-a-half-mile circle.”

Tommy, a committed exerciser, who regularly walks two miles around our neighborhood, brightened when he heard my daughter’s suggestion.

Jamaica Pond is indeed a beautiful area, with sailboats lolling on the water, parents pushing strollers, athletes jogging or running, and dog owners tugging leashes.  As soon as we dropped our suitcases in our room, my husband and I turned left from our front door and headed for the stoplight.

Before we reached the corner, Tommy started to cross. “Honey,” I said, as I dragged him back. “Look at these cars speeding by. You can’t cross here. We have to go to the light.”  We didn’t do the complete circle, just enough to give us a taste.

On the afternoon of my granddaughter’s show -- our primary reason for coming to town -- I was relaxing on the bed when I looked up to see Tommy lacing his gym shoes.

“Where are you going?” I asked. He pointed in the direction of the pond. “But, I don’t want to go,” I said. “I’m resting.”

He continued to point and indicated he was planning to leave without his hawk-eyed wife.

“You can’t go alone.” I said. I jumped from the bed. This time, I had a visual: in my mind’s eye, I saw him cross in the middle of the street. If he did make it to the other side, I pictured him lost. I envisioned a police search, a missed performance, and a daughter miffed at my messing up the evening.

But then I thought: I’m overreacting. Maybe he can handle it. I stuffed his pockets with the B&B’s address, my business card, and his cellphone.

Then, Tommy decided to shave. He used a Bic razor because he forget to bring along his electric. When he emerged from the bathroom, his chin was bleeding. He was heading for the door.

“Honey,” I said. “You’re bleeding. You can’t go out like that.”

I pulled him to the bed and applied Neosporin and a Band-aid. The words, “what were you thinking” suddenly slapped me. If Tommy didn’t notice, nor care, that he was bleeding, how could he travel safely on his own to the Pond?

“I’ll go with you,” I said. I put on my gym shoes, we turned left at the front door, crossed the road at the light, and did a 20-minute trek.

That evening, we had front row seats. My eyes didn’t leave my granddaughter for the entire musical. Well, maybe once or twice. He thought she was terrific, too.

Take Care of Yourself

It’s 8:45 in the morning and I’m at the living room window watching my husband enter the passenger side of a car that is not mine.

The driver is an attractive young woman. In some other scenario, I’d be the jealous wife, tearful at Tommy’s choice of a new companion. But since this is my life, and the driver is my aide, my feelings are of relief, not wrath.

Hiring someone to spell me from full-time chauffeuring was sparked some months ago by directives from friends and relatives. “Be sure to take care of yourself,” they had said when they learned of my full-time responsibilities. Primary progressive aphasia, a brain degeneration that has shattered my husband's speech, has also changed me into his interpreter, advocate, and guardian.

To be honest, when I first heard that “take care of yourself” advice, I thought, easy for you to say.  That sounds petulant, I know, but I wondered how I could do that with my home and work responsibilities, our budget, and my stubborn spouse.

Then, I had a second thought: I deserve it. So, I decided if I could be untethered from driving, let’s say, by arranging a substitute for the three days I ferry my husband back and forth to the YMCA, I could count that as fulfilling my loved ones’ order.

I went online and booked a taxi that would pick up Tommy at 8:45 in the morning on Mondays, Wednesdays, and Fridays, and drop him at the Y at 9. Then return at 11:45 to get him from the coffee shop around the corner of the Y. I arranged a month of these round trips.

“Honey,” I said on that day before my first day of Taking Care of Myself, “I’m going to a spa early tomorrow.  A taxi will be outside at 8:45 to drive you to the Y. Be sure to be downstairs.”

“Okay,” he said. He looked glum.

The next day I left the house early. Tommy was still asleep awaiting his own alarm. Off to the spa I went. First a massage, than to my locker to change for more pampering. As soon as I twirled the combination lock, I heard my iPhone ringing. This was not a welcome sound.

“Come home!” Tommy struggled to get out. (He still had words back then.) I looked at my watch, it was 9:15.

“Honey, what are you doing home?” I said. “Didn’t the cab arrive to get you?”

“Come home!” he repeated. “The cab left!”  This is what I figured: the cab arrived at 8:45 as ordered; Tommy was slow getting downstairs. The driver may have phoned the house, but Tommy didn’t pick up. The driver left.

“I’ll be there as fast as I can,” I said. As I raced past the receptionist, I tossed, “cancel my next appointment.”

“No cabs!” Tommy said as soon as I walked in the door.

“No, no more cabs,” I said. I went online and deleted the remainder of the taxi drives.

I returned to full-time chauffeuring until recently when I decided to try again. But, not with a cabbie.  And this time, I was less ambitious and sought only one day off, not three.

The job description I dictated to everyone I knew went something like this: Wanted, male or female to spell me one day per week. Own auto essential. Medical background a plus. Patience a must.

Enter the attractive young woman who met all my requirements. When I first introduced this new chauffeur to my husband, he gave her two thumbs up.

Today, with Tommy's comely driver at the wheel, I've elected to use my three hours to stay home. I will not shower, nor put on make-up. I will dress in sweats, sans underwear. I will not leave the house or get into a car. I will not drive back and forth, back and forth. I will not watch over anyone but me, and the dog.

That's Step One in Taking Care of Myself. For Step Two, I will go back online and schedule a taxi cab to pick me up on a day my husband will be tucked in for a long morning nap.

I will be downstairs on time and give the cabbie -- who is a driver that is not me -- the address of the spa I had abandoned all those months ago. I will head to the receptionist's desk and once again book a massage, a manicure, and a pedicure. And as I luxuriate, I will pray that my iPhone keeps her mouth shut.

Grateful He’s A Tightwad

I’m in the audience of a medical conference on Frontotemporal degeneration (FTD) and Primary Progressive Aphasia (PPA), little-known illnesses to most, sadly familiar to me. The auditorium is filled with caregivers, and members of the healthcare field.

Every since my husband was diagnosed in 2009, I’ve become well-versed on the PPA version of the condition. But I figure there’s always more to learn, so here I sit hoping to catch news of some miracle cure.

I listen to speaker after speaker. Yes, awareness is building. Yes, research continues. But, no, no hope yet for reversal of Tommy’s loss of speech. I slump in my seat, discouraged.

A speaker steps on stage to introduce the topic of bvFTD. My attention sharpens; this version is new to me. I learn that the “bv” that precedes FTD stands for “behavior variant.” Those burdened with those added initials, “can experience excessive spending with a lack of awareness of its implications,” she says.

Then, hands are raised in the audience, microphones are passed, and the horror stories begin -- of loved ones’ shoplifting, impulsive buying, and falling prey to Internet swindlers.

“I came home and there was a boat in my driveway,” says one caregiver who has risen to her feet.

The microphone goes to a man who volunteers, “She bought a new car, never discussed it with me.”

I overhear a woman seated in my row who says to someone on her right, “My husband sent money to Nigerian scammers, and when I stopped it, they started harassing me.”

And there was more: sweepstakes, mail orders, contests, door-to-door salespeople, lotteries; all spilled out as examples of bvFTD misery.

“My God,” I say too loudly. To myself, I think, even if my husband could still talk, or use computers, he’d never get bvFTD because he’s a tightwad.

As I lean back in the cushioned seat, I recall a scene that supports my logic.

“I like it,” Tommy had said as he stared at the new Timex I fastened on his wrist.

“You do?” I said. I stood back, hands on hips, and studied him as he twisted it upright so its white face was easily visible.

I was pleased at my husband’s reaction because this watch, which I had purchased at Nordstrom’s for $65, replaced the Pulsar he had worn for 40 years.

Throughout our marriage, I tried to get Tommy to give up that elderly timepiece. But, he always insisted on new batteries or fresh bands to keep it alive.

“Nope, this is dead,” was the last repairer’s diagnosis. 

“Please let me buy you another,” I had said to Tommy. “I promise not to spend a lot.”

The Pulsar wasn’t the only long-held possession I’ve attempted to pry from my husband’s hands, and replace with a newer version. I’m still unsuccessful with his balding brown leather wallet.

“Look, Honey,” I say whenever we pass a display of billfolds. “This looks just like your old one. It’s not expensive. How about it?”

He’ll shake his head “no,” put a hand on his pants’ leg to verify I haven’t pick-pocketed it, and pull my elbow to move me along.

Naturally, our differing views on spending money showed up early in our marriage. Although Tommy and I both grew up in households with little cash, my father was careless with money. I caught that gene and in my marriage to my first husband, a doctor, my lineage had a field day.

As for Tommy, paychecks were parceled out for necessities. He skipped college, and went into the Air Force to help support his widowed mother.  After the military, he worked to pay rent, utilities, his YMCA membership, and to build up a small savings account. No car, no credit cards, no up-to-the-minute fashions, no travels.

When we wed, I tried to spoil him with a joint checking account, credit card, and a few doodads that I was happy to bestow on my penny-pinching husband. And while Tommy enjoyed these gifts, he never became infected with my loose-spending ways.

Now, as I sit in the auditorium, riveted by tales of depleted savings, unwanted merchandise, and giant credit card bills, I feel sympathy for those who cope with the wreckage left in bvFTD’s wake.

For myself, I admit to new gratitude. True, no miracle cure awaits my husband, But his frugality, thus far, has kept us both from drowning.

Learning to Un-Drive

Tommy and I were stalled in traffic, classical music was playing on the car radio. It seemed a good time to finally ask the question.

“Honey,” I said, turning to my husband, silent in his passenger seat. 

“Do you miss driving?” 

That question had been a pest in my brain ever since I took away his car keys. I knew I had to force it out, place it before Tommy if the guilt ever were to leave. 

Needling in my conscience: How could I have deprived him of driving, of a skill he had worked so hard to accomplish? How could I have robbed him of his independence when so much had already been snatched way? 

Tommy turned towards me, shook his head “no.”  Then, he raised his hands and turned two thumbs down. 

“You don’t miss it?” I said. I wanted to be sure I understood his meaning. I wanted to cleared of my crime, off the hook. 

Another head shake, “no.” 

I thought it ironic I was the one who took him off the road, when I was the one who had put him there. 

It was 1999, the second year of our marriage. I was in the driver’s seat; Tommy a passenger because he didn’t own a car, had no license. 

“You’ve got to learn how to drive,” I had said. “I’m tired of doing all of the driving.” 

He was 64 at the time and took up the challenge as if he were a teen yearning for a shot at his dad’s wheels. 

After a series of lessons, Tommy got his license. I watched as he placed it in his wallet,  tender and proud as a dad tucking his newborn in for the night. 

For a time, we shared my car, but soon, like that teen he resembled, he wanted his own. To dealerships we went, inhaling new car scents as we circled autos, debated exterior colors, interior upholstery, and the wisdom of a sunroof. 

Finally, Tommy choose a champagne-colored sedan with power steering, power windows, a fob keychain that unlocked and relocked the doors, and cup holders. 

“I love it!” he had said, sitting upright in the driver’s seat of his new car, hands at two and ten o’clock as instructed. I was happy for him, and for me. I’d now have my car all to myself. 

At the beginning, when we’d go out together, we’d use his car. We were like many married couples; husband in the driver's seat, wife a passenger reading the map, tuning the radio, or day dreaming out the side window. But, after awhile, I couldn't abide Tommy's driving, 

"Red light, red light!" I'd shout and stamp my foot on my imaginary brake. 

"I see it, I see it!" he'd say, and we'd both bounce towards the windshield as the car came to an abrupt stop. 

Eventually, I took the coward's way out. When Tommy was at the wheel, I'd settle into the passenger seat, close my eyes and keep them shut until I heard the ignition switch turn off. 

As the years passed -- without me alongside harassing or zoning out -- he started to have a few scrapes. Then three red light tickets in a row. And finally, the brain degeneration he was diagnosed with in 2009 slowly began to rob him of speech. 

I worried, how could he explain himself to another driver if he were to have an accident? To a police officer? Neighbors who knew of his condition and had witnessed him leaving the scene of a fender bender, worried about their young children. I insisted he stop driving. 

Of course Tommy protested, who wouldn’t. He surrendered when I threatened to have his car battery removed. And, when I promised I’d drive him whenever and wherever he wanted to go, he fished his keys from his pocket, held them in his fist for a second, then dropped them in my palm. 

The following week we sold his car, the champagne-colored, full-featured, with sunroof, sedan he loved. 

True to my word, I now drive my husband whenever, wherever. In my car, with me in the driver’s seat and Tommy in the passenger’s, I chauffeur him back and forth to the YMCA three days a week, to the golf store for putting practice, drop offs at the bowling alley or golf course to meet his buddies, to Home Depot or the garden shop for his supplies, and to doctors’ appointments. 

Although I had once complained about being at the wheel full-time, and I have returned to that role, I’m not resentful. Tommy said he didn’t miss driving. He repeated it with two thumbs down.